Monday, September 08, 2008

Truth in Advertising

Or something like that. It's come out in various places that Eleri is Not Doing Well.

This is true. See, the body can only run on stress and adrenaline for so long, before things start shutting down. When they say that stress can kill you, they mean it, and I'm trying to put the brakes on before the ride gets that wild.

I'm doing my best to keep up with the obligations I've already made, like making it to Mysterium, and getting to AustinGDC. But after that, I'm likely to drop off the face of the D'niverse planet for a while. (I can hear the party scheduling starting already! ;))

My community focus, after that, will be Mysterium 2009. I need to not jump into any other projects, as much as I'd like to.

I need time to heal, physically and beyond, if such a thing is possible. The good thoughts people have sent really do help. The whole community means lots to me, theres so much in my life that feels very bleak, that seeing the hope and vitality of the community, being able to do things that *matter* to the community, does me worlds of good.

Hang in there for MORE, everybuggy.

Thursday, September 04, 2008

Smith-Magenis Syndrome

September is Smith-Magenis Syndrome Awareness Month. Both my daughters, Mousie and Pookie, have the RAI1 gene mutation associated with SMS. Mousie is officialy diagnosed, while Pookie is not, based on the existing diagnistic criteria.

If you've ever wanted to ask me questions about SMS, or the girls, but were unsure how or what to ask, feel free to jump in here.

Also, please visit PRISMS for more information on SMS, events supporting SMS families, and how to help.